Privacy Considerations - moj-analytical-services/splink_demos

In this section, we will discuss privacy considerations in the context of the Splink Demos project. We will highlight data privacy concerns in record linkage and present best practices for addressing them.

Data Privacy Concerns in Record Linkage

Record linkage, the process of identifying and linking records that refer to the same entities across different data sources, can raise privacy concerns. The primary concern is the potential for re-identification of individuals in the datasets being linked. Even if the datasets are initially anonymized, the linkage process may inadvertently reveal sensitive information about individuals.

Best Practices for Addressing Privacy Concerns

  1. Data Minimization: Only collect and use the minimum amount of data necessary for the task at hand. This reduces the potential harm in case of a data breach or unintended disclosure.

Example: In the Splink Demos project, use only the necessary attributes for linking records, and avoid collecting or using sensitive or unnecessary information.

  1. Anonymization and Pseudonymization: Remove or obfuscate direct identifiers, such as names and social security numbers, before linking records. Use techniques like hashing, encryption, or tokenization to protect sensitive data.

Example: In the Splink Demos project, use Splink’s built-in privacy protections, such as Bloom filters and shingling, to minimize the risk of re-identification.

  1. Differential Privacy: Implement differential privacy techniques to add noise to the data, making it more difficult to re-identify individuals.

Example: In the Splink Demos project, explore the use of differential privacy techniques to further protect sensitive information during the linkage process.

  1. Access Control: Implement strict access control policies to ensure that only authorized personnel can access the data.

Example: In the Splink Demos project, use Jupyter Notebook’s built-in access control features to restrict access to sensitive data and code.

  1. Data Sharing Agreements: Establish clear data sharing agreements with all parties involved in the record linkage process. These agreements should outline the purpose of data collection, the data retention policy, and the measures taken to protect data privacy.

Example: In the Splink Demos project, ensure that all collaborators sign a data sharing agreement before accessing any sensitive data.

  1. User Education: Educate users about the importance of data privacy and the measures taken to protect their information.

Example: In the Splink Demos project, provide clear documentation on the privacy protections implemented and best practices for handling sensitive data.

Additional Resources

By following these best practices and utilizing the privacy-enhancing features provided by the Splink Demos project, you can help ensure the protection of sensitive data and maintain the trust of the individuals whose information is being linked.